Tuesday, March 03, 2009
Last night Skyler had his first dose of trileptal. He fell asleep around 8:30 – which is good.
Today, with school closed due to the snow and ice, we were able to keep close tabs on him. We watched for changes. He was calm most of the day. Did many of the things he usually does at home – computer, cars, and games. There were things he refused to do – pick up toys, also the norm. We usually have to coax him promise him something to get things done. Promises include negatives sounding things – like if you do not pick up your toys now, we won’t go to McDs this week. At speech, he was difficult and did not comply with most of the things Donna asked him to do.
Ate well.
Tuesday night: Hyperactive, did not fall asleep until after 10:00PM; did not sleep well. Many dreams, talking in sleep, moving around – very uncomfortable.
Wednesday: did not eat much breakfast, maybe half a pop tart and some juice.
School called said he was throwing up.
He came home holding his chest, extremely pale. Continued to spit up until 12:30 then suddenly regained color.
No real vomiting…more of a clear colored liquid.



March 2
Today I was looking at old notes about the dangerous things Sky might do. It hit me that I never mention swings. No matter how often I warn him, he still will walk in front of a moving swing. The rest of this old note mentioned getting off of moving things before they stop – swings, motorized things like toy vehicles, carousels and yesterday, for the first time, when we pulled in the yard he unlatched his seatbelt, slid across to the door without a child-lock and had it open as we stopped. Lesson: child-lock both rear doors!




Feb 26th
Concerns about workers: This one wanted to leave because she said she could not run his goals at home. Others have said, "I ran his goals, so I am leaving."
It’s dizzying.
While workers were attending Skyler, I managed to get two broken printers! The worker was writing his notes.
There was also the day; the bathroom was full of baby powder. It was everywhere. My daughter saw the worker, in my bedroom on a cell phone!
Homework…this is the best way for Skyler to accomplish his writing and fine motor goals. Sometimes they do not even attempt to address his homework. Sometimes it is done well, incredibly well; I know Sky didn’t do it!
I have to leave the room because the worker is uncomfortable with me there. She stands around and does nothing when I am there! There are times when the worker and I need work together to accomplish Sky’s goals.
I really feel as though Fred and I are the only ones accomplishing his goals. No one but Fred and I worked on his holding a spoon properly. He used to turn it upside down and get it all over himself! It was a written goal, but if we said it was time for Sky to eat, workers took that opportunity to leave early!





Saturday Feb 14
In Target: He did not want to leave. He lay on the floor – his idea of a sit-in.
Coaxing does not work. We used coercion in the form of picking him up and putting him in a shopping cart still works but he is getting heavier.





Feb 3 09
We went to a restaurant for dinner and Sky broke away from us and ran into the restaurant. I went after him; tried to coax him back to where his Papa was. No luck. He wanted to run around the buffet, looking at everything in the place. This behavior is par for Skyler’s course. He ate well. Then, after dinner, he continued his pattern of getting up and running around. Now, he is watching a movie – Speed Racer. In a few minutes, we will try to get him to go to sleep. Loosely translated that means he will leave his bed and come in ours. It also means that we go to bed too. This process sometimes takes up to two hours, so by then we are all asleep!



January 29, 2009

Skyler did not read The Wagon. She showed him the social story I wrote and asked him to read it. He read the page aloud, and then pointed to the specific line and said, “See. It says, 'I will not read it!'”

Ms Lee offered him another book about birds. It was actually at a higher level. He got very excited about the new book and read it right away.
Ms Lee thinks not reading The Wagon was a power play.

I learned not to write negative things in my social stories. I took that line our of his story.



January 28 09
Skyler has been refusing to read for Ms Lee. She cannot grade him for this report period.
I tried a social story. My first:
Skyler’s Reading Day
Miss Lee is my teacher.
She wants me to read “The Wagon”.
I said, “I will not read that book.”
Miss Lee feels sad because I do not try.
I want Miss Lee to be happy.
Today, I will try to read “The Wagon.



Thursday 1/8/09
At the shot clinic, he wanted to play outside. He ran away (in parking lot) and refused to come back.
“NO! I NOT COME BACK!”
Ms Lee said he was like that all day - “Up and down”, meaning good and not good…